La endometriosis es una enfermedad crónica que padecen entre un 10 y un 15% de las mujeres. Toda la información sobre la enfermedad la tienes en el enlace anterior. En esta sección de TopInfluencers te ofrecemos una lista de las cuentas más influyentes en Redes Sociales relacionadas con la endometriosis.
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Endometriosis (258)
| N. | Nombre | Score | Text | Local. | 
| Lists | |
|---|---|---|---|---|---|---|---|
| 1 |  |
@Endofound (Endometriosis Foundation of America) |
40 | The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark endometriosis research. | Internacional | 14,9K |
154 |
| 2 |  |
@drfcarmona (Dr Francisco Carmona) |
40 | #Ginecólogo de Barcelona en @WomensCD_. Cirugía Ginecológica por Laparoscopia, #Endometriosis, Suelo Pélvico, Cáncer y Reproducción Asistida. Tel 934160606 | Barcelona | 2,2K |
42 |
| 3 |  |
@Asso_EndoFrance (EndoFrance) |
38 | Soutenir Informer Agir #Agréée par le #MinistèredelaSanté "Les idées reçues contre l'#endométriose"#LaetitiaMilot #ThomasRamos #financelarecherche #1erSPOTtv | Internacional | 6,7K |
53 |
| 4 |  |
@MathewLeonardi (Mathew Leonardi MD PhD ) |
37 | MIG surgeon & sonologist @McMasterU; "Diagnosis is Therapy" PhD @Sydney_Uni diagnosis/management of #endometriosis. Young Ambassador @WES & #NGen @ISUOG | Internacional | 3,5K |
23 |
| 5 |  |
@EndoWhat (ENDO WHAT) |
36 | Almost 200 million people have the most common, devastating disease you may not know. @endowhat on FB, Insta + Twitter. New film BELOW THE BELT coming soon! | Internacional | 4,3K |
43 |
| 6 |  |
@WWEndoMarch (Worldwide EndoMarch) |
36 | The EndoMarch global movement has ignited an international endometriosis uprising & is leading the way in the fight for Endometriosis Health Care Reforms. | Internacional | 4,1K |
50 |
| 7 |  |
@endo_ireland (Endometriosis Association of Irelan) |
35 | The Endometriosis Association of Ireland gives support & info to those living with and affected by endometriosis and adenomyosis. CRN 20021672 info@endo.ie | Internacional | 5,3K |
61 |
| 8 |  |
@CamranNezhatMD (Camran Nezhat, M.D.) |
35 | Dr. Camran Nezhat is the director of Camran Nezhat Institute & has been called the father of modern-day operative laparoscopy for inventing Video-Endoscope. | Internacional | 2,0K |
32 |
| 9 |  |
@EndoLadyUK (Endo The World) |
35 | I'm just a girl tweeting and blogging about life with #endometriosis and #adenomyosis. Trying to figure out how to lead a good life despite chronic illness. | Internacional | 2,9K |
50 |
| 10 |  |
@TheEndoNetwork (The Endometriosis Network Canada) |
34 | Registered charity in Canada dedicated to raising awareness of endometriosis and providing support and educational resources to those it affects. | Internacional | 2,3K |
42 |
| 11 |  |
@FTWW_Wales (FTWW Wales) |
34 | Fair Treatment for the Women of Wales. Our aim is access to optimal healthcare for women in Wales. Our campaigns include #endometriosis #miscarriage #menopause. | Internacional | 2,3K |
63 |
| 12 |  |
@BattleWithEndo (Anna ) |
34 | Oversharer | Stage IV Endometriosis | Mama & Wife | Co founder of Menstrual Health Project | @BeYouPeriod Ambassador | | Internacional | 2,1K |
50 |
| 13 |  |
@endomeque (Endomequé) |
34 | Queremos dar a conocer la #endometriosis y ayudar a su investigación #AcabemosConElTabuDeLaEndometriosis | Internacional | 1,4K |
7 |
| 14 |  |
@endovikinga (EndoVikinga) |
33 | Escribo sobre #endometriosis #dolorcrónico o #migraña porque son parte de mí pero, soy mucho más. Soy #endovikinga endovikinga@endovikinga.com | Internacional | 5,2K |
84 |
| 15 |  |
@EndometriosisAu (EndometriosisAust) |
33 | Endometriosis Australia, a national charity endeavours, to increase recognition of endometriosis, provide education programs, and funding for research. | Internacional | 4,2K |
56 |
| 16 |  |
@theendoco (The Endometriosis Coalition) |
32 | The Endometriosis Coalition works to raise awareness, promote reliable education and increase research funding for endometriosis • 501(c)(3) | Internacional | 669 |
10 |
| 17 |  |
@adaecestatal (ADAEC Endometriosis) |
32 | Asociación de afectadas de endometriosis. https://t.co/7VUwRBWPQp Instagram: adaecestatal | Internacional | 1,5K |
7 |
| 18 |  |
@WERF_research (WERF) |
32 | The World Endometriosis Research Foundation (WERF) conducts international multi-centre studies to improve knowledge about and treatments for endometriosis. | Internacional | 2,0K |
25 |
| 19 |  |
@Endometriosis11 (Endometriosis Cure) |
32 | Detailed information about endometriosis and practical methods to overcome it. | Internacional | 12,0K |
53 |
| 20 |  |
@Endocolombia (EndometriosisColombia) |
31 | Asociación colombiana de endometriosis e infertilidad | Colombia | 1,3K |
13 |
| 21 |  |
@GeorgeCondous (george condous) |
31 | Gynaecologist Endometriosis Imaging Laparoscopist Academic #endometriosis #gynaecology #sydneyendometriosis Views expressed personal https://t.co/fraHpC1rTX | Internacional | 1,6K |
7 |
| 22 |  |
@EsEndometriosis (EsEndo) |
31 | Cuenta dirigida a afectadas de endometriosis, entorno, profesionales sanitarios y toda institución u organización interesada en esa patología y sus efectos | España | 2,5K |
24 |
| 23 |  |
@EndoCatalunya (Endo Catalunya) |
31 | https://t.co/qjoHxkazds https://t.co/YlOevIbAm3 | España | 2,0K |
33 |
| 24 |  |
@TheCurlyLucy (Miss Lucy #TheBigSnip40) |
30 | Artist. Curly. Mophead. #Endometriosis. Politics. Tea. Cats. Mildly sweary. Adorable. | Internacional | 2,4K |
99 |
| 25 |  |
@redinfertiles (Red Infertiles) |
30 | Asociación nacional sin ánimo de lucro. Punto de encuentro para pacientes con #infertilidad. Dando VOZ a la InfertilidadNo estás sola. | España | 3,8K |
32 |
| 26 |  |
@WorldEndoSoc (WES) |
30 | The World Endometriosis Society (WES) leads the way in endometriosis and adenomyosis and is delivering the 15th World Congress on Endometriosis (WCE2023) | Internacional | 2,9K |
32 |
| 27 |  |
@endomadrid (Asociación ENDOMadrid) |
30 | Trabajamos por los derechos y el bienestar de las afectadas de #endometriosis y #adenomiosis de la Comunidad de Madrid | Internacional | 1,9K |
43 |
| 28 |  |
@MLouiseHull (Prof (mary) Louise Hull) |
29 | Fertility specialist doctor, Endometriosis researcher and Adolescent gynaecologist advocating for best reproductive care in all health sectors | Internacional | 1,5K |
8 |
| 29 |  |
@FurrowedFox (Fox) |
29 | Reproductively challenged. Lady bits are FUBARed. Ectopic x2. Failed surrogacy. Adoptive mom. Endo/Adeno/Hyster. ProChoice Feminist. | Internacional | 1,4K |
68 |
| 30 |  |
@Kathleen_M_King (Kathleen King (Support Medical Scie) |
29 | #endometriosis #adenomyosis advocate. Medical Scientist Societal Champion/Patient Advocate @CailinAI Learn more at https://t.co/lHjLQkDOUJ | Internacional | 1,5K |
17 |
| 31 |  |
@MyEndoTeam (MyEndometriosisTeam) |
28 | The social network & online support group for people living with #Endometriosis with more than 110,000 members! You are not alone! #EndoSisters #EndEndo | Internacional | 2,6K |
22 |
| 32 |  |
@EndoSurvivors (EndometriosisNigeria) |
28 | Non-profit organization raising awareness about endometriosis and promoting menstrual health in Nigeria | Internacional | 597 |
5 |
| 33 |  |
@EndoUpdateBlog (EndometriosisUpdate) |
27 | Making research into endometriosis accessible to everyone. Run by Dr Matthew Rosser, University of Warwick | Internacional | 5,3K |
51 |
| 34 |  |
@endowestlothian (Endo Warriors WL) |
26 | Independent Scottish Awareness & Action Support Group. We Raise Awareness Globally For Endometriosis, This Extremely Ugly Disease Affects 1in10 | Internacional | 2,5K |
11 |
| 35 |  |
@NatashaLeighOrr (Natasha Orr) |
26 | Endometriosis and Sex Researcher // PhD Candidate @UBC // Public Scholar @UBC // If you can’t remember my name, just say “chocolate”... I’ll turn around | Internacional | 453 |
4 |
| 36 |  |
@PelvicPainEndo (Pelvic Pain & Endometriosis BC) |
26 | Leader in Endometriosis Care & Research Medical Director @DrAllaire https://t.co/FMT5FCP7nK Research Director @DrPaulYong https://t.co/QvxNnACFEi | Internacional | 1,3K |
20 |
| 37 |  |
@Endo_Support (Endo Support) |
26 | Endo Support, est. 1996, organization focuses on Endometriosis resources and medical guidance. Worldwide Endo March (Endometriosis) ~Team MN USA #EndoDidYouKnow | USA | 3,7K |
48 |
| 38 |  |
@official_seud (SEUD) |
25 | Society of Endometriosis & Uterine Disorders. 8th SEUD Congress | MAY, 18-21 | Athens, Greece #SEUD2022 | Internacional | 1,3K |
17 |
| 39 |  |
@EndoSRN (Int'l Endometriosis Social Research) |
25 | International network sharing & promoting social science & humanities research on endometriosis. Coordinator/Lead: Dr A.Weckesser (annalise.weckesser@bcu.ac.uk) | Internacional | 439 |
2 |
| 40 |  |
@citizen_endo (Citizen Endo) |
25 | Citizen & data science research for an endometriosis cure. Maker of Phendo app to track endo. https://t.co/XDQr2Wco4P | Internacional | 1,3K |
42 |
| 41 |  |
@endometriosisGh (Ghana Endometriosis) |
25 | Endometriosis Foundation Ghana is a Non-Profit Organisation focused on creating awareness on Endometriosis & providing relevant support to the people affected. | Internacional | 827 |
11 |
| 42 |  |
@EndometriosisSA ( | Endowarrior) |
25 | My Endo Journey • Personal acc: @Bontle_M • ig: https://t.co/KVBz1Gadm0 #endometriosissouthafrica | Internacional | 327 |
3 |
| 43 |  |
@EndoActCanada (EndoAct Canada) |
25 | We drive policy action on endometriosis in Canada Susciter des initiatives pour l’endométriose au Canada | Internacional | 405 |
3 |
| 44 |  |
@suzieassanie (Sawsan As-Sanie, MD MPH) |
25 | MIS GYN Surgeon @umichmedicine working to improve evidence-based, patient-centered care for #endometriosis #pelvicpain #adenomyosis #uterinefibroids. views=own | Internacional | 867 |
12 |
| 45 |  |
@DonnaMarie_DML (Donna Marie London) |
24 | u up o uool * * * ** °*. ·**. * | Internacional | 441 |
13 |
| 46 |  |
@DrPaulYong (Paul Yong) |
24 | Research Director and Gynaecologist @pelvicpainendo // Associate Professor @ubcOBGYN | Internacional | 447 |
0 |
| 47 |  |
@endopr2010 (Endometriosis PR) |
24 | Foundation for Patients with Endometriosis in Puerto Rico that provides information and support | Internacional | 1,6K |
27 |
| 48 |  |
@EndoFoundKE (Endometriosis Foundation of Kenya) |
23 | Internacional | 709 |
0 | |
| 49 |  |
@MulherEndo (MulherEndo) |
23 | Associação Portuguesa de Apoio a Mulheres com Endometriose | Internacional | 688 |
10 |
| 50 |  |
@aendoeeu (A Endometriose e Eu) |
22 | Criado pela jornalista Caroline Salazar, o blog é o pioneiro em retratar o dia a dia de uma portadora e a lutar pelos direitos das endomulheres brasileiras | Brasil | 892 |
4 |
| 51 |  |
@endovzla (Endometriosis) |
22 | La endometriosis es una enfermedad crónica, invisible para todo aquel que no la padece, pero muy real para muchas mujeres, sin embargo, no están solas. | Internacional | 477 |
6 |
| 52 |  |
@EndoHeal (WendyKLaidlaw@Endo) |
22 | Best selling author, entrepreneur, podcast host, empowering women around the world on how to heal their endometriosis naturally using the Laidlaw Protocols. | Internacional | 322 |
5 |
| 53 |  |
@EndoWarriors (Endo Warriors) |
22 | We're a support organization for those with endometriosis. Based in NYC. Stand Together, Fight Together. | Internacional | 5,4K |
56 |
| 54 |  |
@Esprit2T (ESPriT2 Trial) |
22 | Laparoscopic removal of superficial peritoneal endometriosis and its effect on health outcomes @horne_research | Internacional | 170 |
1 |
| 55 |  |
@EndoForum (#FamilyMatters-EndTravelBan ) |
21 | Internacional | 4,2K |
55 | |
| 56 |  |
@Endomarch_Wales (EndoMarchWales) |
21 | The Wales legs of @WWEndoMarch at #Mold & #Cardiff. Raising awareness of #endometriosis, the debilitating condition that affects 1 in 10 women. #EndoMarch | Internacional | 590 |
6 |
| 57 |  |
@2013Clairew (Endometriosis fife) |
21 | Your not alone we fight endo together I am here to support everyone who fights. You have endo but it doesn't have you fifeendogroup@gmail.com | Internacional | 1,4K |
5 |
| 58 |  |
@EuroEndoLeague (European Endometriosis League) |
21 | The European Endometriosis League supports research and enhances public awareness throughout the European countries in the field of endometriosis since 2005. | Internacional | 1,3K |
11 |
| 59 |  |
@EndoUncovered (Endo Uncovered) |
21 | “Uncover the truth that already exists within the endometriosis community”. Our mission is to reveal the injustices and TRUTH within the Endo Community. | Internacional | 609 |
3 |
| 60 |  |
@EndoAlberta ( Endo Alberta ) |
21 | Endometriosis Alberta Support Group. Providing support, advocating and giving a voice to those suffering with Endometriosis Instagram: @ endo.alberta | Internacional | 428 |
4 |
| 61 |  |
@endostats (EndoStats) |
21 | Endometriosis awareness, data science, microbiome research and global policy. Simplifying statistics so solutions can be found. @julieprilling #systemicchange | Internacional | 2,1K |
0 |
| 62 |  |
@Endo_Jenn (Jenn Schropp) |
21 | Endometriosis & MS Patient Advocate - Writer - Photographer - Dogmom - Womens Rights Are Human Rights WEGO Health Award Finalist 2021 Views are my own. | Internacional | 1,4K |
7 |
| 63 |  |
@EndoUKWales (Endometriosis UK Wales gbwls) |
21 | Official Wales specific @EndometriosisUK account. Providing support services, information and a community for those affected by endometriosis living in Wales. | Internacional | 240 |
5 |
| 64 |  |
@PoliceEndoWG (National Police Endometriosis Worki) |
21 | We are a group of police officers from around England & Wales, working together to spread awareness of endometriosis & build support networks within policing. | Internacional | 391 |
5 |
| 65 |  |
@Endoandpcosbb (Barbados Association of Endometrios) |
20 | Increasing Endometriosis & polycystic ovarian syndrome awareness and providing support in Barbados. Email: endoassociationofbdos@gmail.com | Internacional | 576 |
11 |
| 66 |  |
@exppect (EXPPECT Edinburgh) |
20 | News, comments and advice from Edinburgh’s EXPPECT Centre for Pelvic Pain and Endometriosis @MRC_CRH @horne_research @p_saunder | Internacional | 1,6K |
7 |
| 67 |  |
@EndoDundee (Endometriosis UK Dundee Support Gro) |
20 | Support group covering Tayside and surrounding areas for those with suspected or diagnosed Endometriosis run by @ChickyC1988 https://t.co/aMp4RYC8l5 | Internacional | 1,2K |
5 |
| 68 |  |
@keisha_meek (Keisha Meek ) |
20 | Founder of National Endometriosis Survivors Support https://t.co/DYxPf9YSGt All views are my own. | Internacional | 1,2K |
6 |
| 69 |  |
@Michele68836887 (Michele Jansz) |
20 | Supports Excision lending to pathology for Endometriosis patients. #sideeffcts #chartnotedisastergirl #endometriosis *opinions expressed are my own* | Internacional | 227 |
1 |
| 70 |  |
@Endo_HU (Endometriosis.net) |
19 | A community for people affected by endometriosis. Learn, share, and connect with peers and healthcare professionals. | Internacional | 626 |
1 |
| 71 |  |
@EndoNed (EndoAwarenessNL/BE) |
19 | Endometriose Awareness Nederland/België verschaft informatie met als doel inzicht en ondersteuning te bieden aan vrouwen met Endometriose | Internacional | 229 |
2 |
| 72 |  |
@endoAPPG (Endometriosis APPG) |
19 | Official Twitter Account for the APPG on #Endometriosis. Chaired by @amessd_southend. Contact us on endometriosisappg@endometriosis-uk.org. | Internacional | 1,1K |
7 |
| 73 |  |
@newsforendo (EndoNews) |
19 | Our goal at https://t.co/3mB3JZLss7 is to raise awareness and support women who are struggling in their battle against endometriosis. | Internacional | 418 |
0 |
| 74 |  |
@m_endometriosis (Meddik Endometriosis) |
19 | Questions, advice, news & research on Meddik #Endometriosis. Join Meddik #endosisters at | Internacional | 137 |
6 |
| 75 |  |
@kibarron (Kenneth I Barron, MD) |
19 | Minimally invasive #gynecologic #surgeon, #pelvicpain and #endometriosis specialist at the Center for Advanced Gynecology. | Internacional | 809 |
7 |
| 76 |  |
@CheerUpEleanor (eleanor) |
19 | Nanny, writer, procrastinator, and #endo sister | Internacional | 183 |
1 |
| 77 |  |
@Gabriel_Hrnandz (Gabriel Hernández M.) |
18 | 24. Venezolano. INTJ. UDO-Medicina. Tenis, fútbol y otros deportes. Redactor en https://t.co/uSDcg745uY | Madrid | 1,1K |
9 |
| 78 |  |
@endocansupport (Endometriosis Canada Support) |
18 | Support for all Endo Warriors. You are strong, beautiful and fighting a war. We will be your soldiers standing behind you, always ready to help you fight! | Internacional | 266 |
1 |
| 79 |  |
@EndometriosisPA (Asociación Endometriosis Panamá) |
18 | Héroe por Panamá 2017 Educando y creando conciencia sobre Endometriosishttps://t.co/rXvP0sC8FS | Internacional | 2,8K |
30 |
| 80 |  |
@endoestadistica (Endometriosis España) |
18 | adenomiosis dolor nutri fisio psi fertilidad fármacos menopausia salud pública género investigación #PatientsIncluded.Paciente con voz y blog.Miembra de RedCAPS | Internacional | 1,9K |
125 |
| 81 |  |
@blog_endo (EndoGirlsBlog) |
18 | Board Certified Patient Advocate Educating & Empowering Endometriosis patients | Internacional | 268 |
2 |
| 82 |  |
@carsonsarahj (Sarah Holdsworth-Carson) |
17 | Research Program Manager, Julia Argyrou Endometriosis Centre @epworth @unimelb. Research interests include women's health: endometriosis and uterine disorders. | Internacional | 291 |
3 |
| 83 |  |
@endospain (EndoSpain) |
17 | Federación española de afectadas de #Endometriosis. Entidades promotoras: @AENDOVALENCIA · @AEXAE_ · @ENDOEUSKADI · @ENDOMADRID_ Se suman #AMEFBurgos #ENDOMasRM | Madrid | 253 |
5 |
| 84 |  |
@SpainEndomarch (EndoMarch EndoMarzo) |
17 | Spanish official #EndoMarch2018 Mes de la #endometriosis 24 marzo día de la endometriosis 2018 Difunde en idiomas oficiales #CASTELLANO #CATALA #GALEGO #EUSKARA | Internacional | 602 |
14 |
| 85 |  |
@EndoMarchSpain (EndoMarcha España) |
17 | Movimiento por la Endometriosis a partir de la Marcha Mundial de Un Millón de Mujeres de marzo 2014. Muévete por la Endo; haz oir tu voz el 28-marzo-2015. | Internacional | 905 |
15 |
| 86 |  |
@SurvivorEndo (Endo Survivor I Arundathi Yasok) |
16 | Stage iv #endometriosis I 5 years pain free I Certified Hatha #Yoga therapist I #Author of Confessions of an Endo girl I #writing 2nd book I Breaking Taboos | Internacional | 219 |
1 |
| 87 |  |
@endomx (Endometriosis Mexico) |
16 | La endometriosis es una enfermedad que no tiene cura, habemos más de 7 millones de mexicanas afectadas, por favor, ¡ayúdanos a difundir! | Internacional | 1,5K |
21 |
| 88 |  |
@endoevents (Endometriosis Events) |
16 | We raise awareness and educate for #endometriosis. Host fundraising events in the GTA & Canada. Facilitate monthly support groups. info@endometriosisevents.org | Internacional | 575 |
1 |
| 89 |  |
@DOYOUENDO (DO YOU ENDO) |
16 | DO YOU ENDO is the first bullshit-free online magazine for individuals with Endometriosis by individuals with Endometriosis. It's time to #BreakTheSilence | Internacional | 676 |
4 |
| 90 |  |
@EndoMarchItaly (Endomarch Team Italy) |
15 | supportata da A.L.I.C.E. odv | Internacional | 407 |
0 |
| 91 |  |
@EndomarchLondon (EndoMarch London) |
15 | The Official EndoMarch London Twitter page | Internacional | 1,6K |
18 |
| 92 |  |
@ef_hou (EFHou) |
15 | Endometriosis Foundation of Houston. Our mission is to raise awareness and educate our community about endometriosis. | Internacional | 474 |
2 |
| 93 |  |
@HelgaMarr2 (EndometriosicaInfertil) |
15 | 38a/Endometriosis/Dolor pelvico cronico/ S.fatiga cronica/CI-SVD/3 FIV/Reserva /KIR AA/Trombofilias/Metroplastia/Adenomiosis/Cervix estenosis/Varices pelvicas | Internacional | 326 |
1 |
| 94 |  |
@PeelEndo (Peel Endometriosis Support Group) |
15 | Support group for those affected by #endometriosis. Email peelendo@gmail.com. Follow our sister account @endoevents. | Internacional | 523 |
2 |
| 95 |  |
@EndoUKStaffs (EndoUK Staffordshire) |
14 | Endometriosis UK - Staffordshire Group STAFFORDSHIRE, UK - STOKE-ON-TRENT Living with and fighting Endo one supportive friend at a time | Internacional | 178 |
2 |
| 96 |  |
@ReadEndo (EndoRead) |
14 | Blog and fundraiser for endometriosis research and awareness. Please see site for info. | Internacional | 338 |
4 |
| 97 |  |
@Lpezbenavid (Andres López Benavides) |
14 | Me registre en twitter por pasatiempo pero con el correr del tiempo y por mi hija lo hago para difundir la enfermedad de #Endometriosis. | Internacional | 161 |
2 |
| 98 |  |
@theendofound (The Endometriosis Foundation) |
14 | Our vision is a future where people are empowered to make their own choices, whether that is to have a family, study, to travel or to have a career | Internacional | 2,1K |
13 |
| 99 |  |
@4everPelvicPain (Endometriosis has no cure) |
14 | BSN RN (She/Her) trans people need abortion care too! | Internacional | 610 |
2 |
| 100 |  |
@62091cpcxlen (Endometriosis) |
14 | Internacional | 12 |
1 |
| Previo | Siguiente | Ver todos | Usuarios: 258 Actualizado: 02-07-2022 |
Las mujeres con endometriosis es uno de los colectivos de enfermos más desprotegidos que hay en la actualidad. Pese a que esta enfermedad suele producir dolores incapacitantes nunca se concede una baja por este motivo. Los sucesivos gobiernos de España contemporizan mientras más de un millón de mujeres sufre con cada menstruación dolor pélvico, calambres abdominales y otras complicaciones como la destrucción de algunos de sus órganos y en muchas ocasiones la infertilidad.
Ya han pasado más de 10 años desde la primera PNL que se presentó en el Congreso de los Diputados pero apenas han habido avances para las pacientes. El tiempo medio de diagnóstico es de más de 5 años, no se han abierto unidades de referencia y todo sigue igual.
Por ello este colectivo de mujeres enfermas se han organizado en Internet y la prueba de ello es su gran actividad en redes, foros y asociaciones de pacientes.
(1 votos, promedio: 5,00 out of 5)
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