endometriosis

Endometriosis

La endometriosis es una enfermedad crónica que padecen entre un 10 y un 15% de las mujeres. Toda la información sobre la enfermedad la tienes en el enlace anterior. En esta sección de TopInfluencers te ofrecemos una lista de las cuentas más influyentes en Redes Sociales relacionadas con la endometriosis.

Actividades relacionadas Centro Médico | Salud | Endometriosis | Odontología | Psicólogos y Psicología | Farmacia | Enfermería | Ginecología | Ginecólogos | Sexología | Médicos | Pediatría | Cirugía Estética | Medicina Estética | Dermatología | Cirugía y cirujanos | Cáncer | Cirugía Bariátrica | Colorectal surgeon | Obesidad | Enfermedad de Crohn | Diabetes |

Endometriosis (257)

N.NombreScoreTextLocal. Lists
1 @Endofound
(Endometriosis Foundation of America)
54 The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark endometriosis research. Internacional 15,1K
152
2 @drfcarmona
(Dr Francisco Carmona)
50 #Ginecólogo de Barcelona en @WomensCD_. Cirugía Ginecológica por Laparoscopia, #Endometriosis, Suelo Pélvico, Cáncer y Reproducción Asistida. Tel 934160606 Barcelona 2,2K
42
3 @MathewLeonardi
(Mathew Leonardi MD PhD )
49 MIG surgeon & sonologist @McMasterU; "Diagnosis is Therapy" PhD @Sydney_Uni diagnosis/management of #endometriosis. Young Ambassador @WES & #NGen @ISUOG Internacional 3,8K
26
4 @Asso_EndoFrance
(EndoFrance)
49 Soutenir Informer Agir #Agréée par le #MinistèredelaSanté "Les idées reçues contre l'#endométriose"#LaetitiaMilot #ThomasRamos #financelarecherche #1erSPOTtv Internacional 6,7K
52
5 @EndoWhat
(ENDO WHAT)
49 Almost 200 million people have the most common, devastating disease you may not know. @endowhat on FB, Insta + Twitter. New film BELOW THE BELT coming soon! Internacional 4,7K
42
6 @EndometriosisAu
(EndometriosisAust)
48 Endometriosis Australia, a national charity endeavours, to increase recognition of endometriosis, provide education programs, and funding for research. Internacional 4,3K
55
7 @BattleWithEndo
(Anna )
47 Oversharer | Stage IV Endometriosis | Mama & Wife | Co founder of Menstrual Health Project | @BeYouPeriod Ambassador | Internacional 2,2K
50
8 @endovikinga
(EndoVikinga)
47 Escribo sobre #endometriosis #dolorcrónico o #migraña porque son parte de mí pero, soy mucho más. Soy #endovikinga endovikinga@endovikinga.com Internacional 5,2K
82
9 @endo_ireland
(Endometriosis Association of Irelan)
45 The Endometriosis Association of Ireland gives support & info to those living with and affected by endometriosis and adenomyosis. CRN 20021672 info@endo.ie Internacional 5,4K
59
10 @TheEndoNetwork
(The Endometriosis Network Canada)
45 Registered charity in Canada dedicated to raising awareness of endometriosis and providing support and educational resources to those it affects. Internacional 2,4K
42
11 @WWEndoMarch
(Worldwide EndoMarch)
45 The EndoMarch global movement has ignited an international endometriosis uprising & is leading the way in the fight for Endometriosis Health Care Reforms. Internacional 4,2K
50
12 @Endocolombia
(EndometriosisColombia)
44 Asociación colombiana de endometriosis e infertilidad. Luchamos por garantías en nuestra salud y dignidad menstrual. Colombia 1,4K
14
13 @CamranNezhatMD
(Camran Nezhat, M.D.)
44 Dr. Camran Nezhat is the director of Camran Nezhat Institute & has been called the father of modern-day operative laparoscopy for inventing Video-Endoscope. Internacional 2,1K
33
14 @Endometriosis11
(Endometriosis Cure)
44 Detailed information about endometriosis and practical methods to overcome it. Internacional 12,4K
52
15 @WorldEndoSoc
(WES)
43 The World Endometriosis Society (WES) leads the way in endometriosis and adenomyosis and is delivering the 15th World Congress on Endometriosis (WCE2023) Internacional 3,0K
32
16 @EndoLadyUK
(Endo The World)
43 I'm just a girl tweeting and blogging about life with #endometriosis and #adenomyosis. Trying to figure out how to lead a good life despite chronic illness. Internacional 2,9K
50
17 @TheCurlyLucy
(Miss Lucy #TheBigSnip40)
43 Artist. Curly. Mophead. #Endometriosis. Politics. Tea. Cats. Mildly sweary. Adorable. Internacional 2,4K
98
18 @redinfertiles
(Red Infertiles)
43 Asociación nacional sin ánimo de lucro. Punto de encuentro para pacientes con #infertilidad. Dando VOZ a la InfertilidadNo estás sola. España 3,9K
33
19 @PelvicPainEndo
(Pelvic Pain & Endometriosis BC)
42 Leader in Endometriosis Care & Research Medical Director @DrAllaire https://t.co/FMT5FCP7nK Research Director @DrPaulYong https://t.co/QvxNnACFEi Internacional 1,4K
21
20 @GeorgeCondous
(george condous)
42 Gynaecologist Endometriosis Imaging Laparoscopist Academic #endometriosis #gynaecology #sydneyendometriosis Views expressed personal https://t.co/fraHpC1rTX Internacional 1,7K
7
21 @endomeque
(Endomequé)
42 Queremos dar a conocer la #endometriosis y ayudar a su investigación #AcabemosConElTabuDeLaEndometriosis Internacional 1,4K
6
22 @WERF_research
(WERF)
42 The World Endometriosis Research Foundation (WERF) conducts international multi-centre studies to improve knowledge about and treatments for endometriosis. Internacional 2,1K
25
23 @theendoco
(The Endometriosis Coalition)
41 The Endometriosis Coalition works to raise awareness, promote reliable education and increase research funding for endometriosis • 501(c)(3) Internacional 734
10
24 @EndoSurvivors
(EndometriosisNigeria)
40 Non-profit organization raising awareness about endometriosis and promoting menstrual health in Nigeria Internacional 628
4
25 @EsEndometriosis
(EsEndo)
40 Cuenta dirigida a afectadas de endometriosis, entorno, profesionales sanitarios y toda institución u organización interesada en esa patología y sus efectos España 2,5K
22
26 @adaecestatal
(ADAEC Endometriosis)
39 Asociación de afectadas de endometriosis. https://t.co/7VUwRBWPQp Instagram: adaecestatal Internacional 1,6K
8
27 @MLouiseHull
(Prof (mary) Louise Hull)
39 Fertility specialist doctor, Endometriosis researcher and Adolescent gynaecologist advocating for best reproductive care in all health sectors Internacional 1,5K
8
28 @Endo_Support
(Endo Support)
38 Endo Support, est. 1996, organization focuses on Endometriosis resources and medical guidance. Worldwide Endo March (Endometriosis) ~Team MN USA #EndoDidYouKnow USA 3,7K
47
29 @FTWW_Wales
(FTWW Wales)
38 Fair Treatment for the Women of Wales. Our aim is access to optimal healthcare for women in Wales. Our campaigns include #endometriosis #miscarriage #menopause. Internacional 2,3K
0
30 @DrPaulYong
(Paul Yong)
37 Research Director and Gynaecologist @pelvicpainendo // Associate Professor @ubcOBGYN Internacional 512
3
31 @FurrowedFox
(Fox - Burn it all down )
37 Reproductively challenged. Lady bits are FUBARed. Ectopic x2. Failed surrogacy. Adoptive mom. Endo/Adeno/Hyster. ProChoice Feminist. Internacional 1,4K
67
32 @EndoUpdateBlog
(EndometriosisUpdate)
37 Making research into endometriosis accessible to everyone. Run by Dr Matthew Rosser, University of Warwick Internacional 5,4K
50
33 @endomadrid
(Asociación ENDOMadrid)
36 Trabajamos por los derechos y el bienestar de las afectadas de #endometriosis y #adenomiosis de la Comunidad de Madrid Internacional 1,9K
42
34 @exppect
(EXPPECT Edinburgh)
36 News, comments and advice from Edinburgh’s EXPPECT Centre for Pelvic Pain and Endometriosis @MRC_CRH @horne_research @p_saunder Internacional 1,7K
7
35 @citizen_endo
(Citizen Endo)
34 Citizen & data science research for an endometriosis cure. Maker of Phendo app to track endo. https://t.co/XDQr2Wco4P Internacional 1,3K
42
36 @MyEndoTeam
(MyEndometriosisTeam)
34 The social network & online support group for people living with #Endometriosis with more than 110,000 members! You are not alone! #EndoSisters #EndEndo Internacional 2,7K
0
37 @endostats
(EndoStats)
34 Endometriosis awareness, data science, microbiome research and global policy. Simplifying statistics so solutions can be found. @julieprilling #systemicchange Internacional 2,2K
23
38 @newsforendo
(EndoNews)
34 Our goal at https://t.co/3mB3JZLss7 is to raise awareness and support women who are struggling in their battle against endometriosis. Internacional 446
6
39 @aendoeeu
(A Endometriose e Eu)
34 Criado pela jornalista Caroline Salazar, o blog é o pioneiro em retratar o dia a dia de uma portadora e a lutar pelos direitos das endomulheres brasileiras Brasil 933
5
40 @EndoSRN
(Int'l Endometriosis Social Research)
34 International network sharing & promoting social science & humanities research on endometriosis. Coordinator: Dr A.Weckesser (annalise.weckesser@bcu.ac.uk) Internacional 492
1
41 @official_seud
(SEUD)
33 Society of Endometriosis & Uterine Disorders. 9th SEUD Congress | MARCH, 16-18 | Abu Dhabi, UAE #SEUD2023 Internacional 1,3K
17
42 @endovzla
(Endometriosis)
33 La endometriosis es una enfermedad crónica, invisible para todo aquel que no la padece, pero muy real para muchas mujeres, sin embargo, no están solas. Internacional 477
6
43 @EndoCatalunya
(Endo Catalunya)
33 https://t.co/qjoHxkazds https://t.co/YlOevIbAm3 España 2,0K
32
44 @suzieassanie
(Sawsan As-Sanie, MD MPH)
32 MIS GYN Surgeon @umichmedicine working to improve evidence-based, patient-centered care for #endometriosis #pelvicpain #adenomyosis #uterinefibroids. views=own Internacional 883
12
45 @Endo_HU
(Endometriosis.net)
32 A community for people affected by endometriosis. Learn, share, and connect with peers and healthcare professionals. Internacional 652
2
46 @NatashaLeighOrr
(Natasha Orr)
32 Endometriosis and Sex Researcher // PhD Candidate @UBC // Public Scholar @UBC // If you can’t remember my name, just say “chocolate”... I’ll turn around Internacional 507
4
47 @EndoFoundKE
(Endometriosis Foundation of Kenya)
32 Internacional 726
0
48 @EndoActCanada
(EndoAct Canada)
32 We drive policy action on endometriosis in Canada Susciter des initiatives pour l’endométriose au Canada Internacional 440
2
49 @endometriosisGh
(Ghana Endometriosis)
31 Endometriosis Foundation Ghana is a Non-Profit Organisation focused on creating awareness on Endometriosis & providing relevant support to the people affected. Internacional 836
13
50 @EndoHeal
(WendyKLaidlaw@Endo)
31 Best selling author, entrepreneur, podcast host, empowering women around the world on how to heal their endometriosis naturally using the Laidlaw Protocols. Internacional 323
5
51 @endopr2010
(Endometriosis PR)
31 Foundation for Patients with Endometriosis in Puerto Rico that provides information and support Internacional 1,6K
26
52 @endowestlothian
(Endo Warriors WL)
31 Independent Scottish Awareness & Action Support Group. We Raise Awareness Globally For Endometriosis, This Extremely Ugly Disease Affects 1in10 Internacional 2,7K
11
53 @EndoForum
(#FamilyMatters-EndTravelBan )
31 Internacional 4,1K
54
54 @Kathleen_M_King
(Kathleen King)
31 #endometriosis #adenomyosis advocate. Medical Scientist Societal Champion/Patient Advocate @CailinAI Learn more at https://t.co/Xt7B6RCwfA Internacional 1,5K
18
55 @MulherEndo
(MulherEndo)
31 Associação Portuguesa de Apoio a Mulheres com Endometriose Internacional 692
10
56 @EndoUKWales
(Endometriosis UK Wales gbwls)
30 Official Wales specific @EndometriosisUK account. Providing support services, information and a community for those affected by endometriosis living in Wales. Internacional 256
5
57 @EuroEndoLeague
(European Endometriosis League)
30 The European Endometriosis League supports research and enhances public awareness throughout the European countries in the field of endometriosis since 2005. Internacional 1,4K
11
58 @Esprit2T
(ESPriT2 Trial)
29 Laparoscopic removal of superficial peritoneal endometriosis and its effect on health outcomes @horne_research Internacional 190
1
59 @EndometriosisSA
( | Endowarrior)
29 ‘creating a safe space for healing & wellness’ founder: @Bontle_M • endometriosis awareness • ig: https://t.co/KVBz1Gadm0 Internacional 366
3
60 @endoAPPG
(APPG on Endometriosis)
29 #Endometriosis APPG official twitter account. Chaired by Hannah Bardell MP & Emma Hardy MP. Email us on: endometriosisappg@endometriosis-uk.org Internacional 1,2K
7
61 @DOYOUENDO
(DO YOU ENDO)
28 DO YOU ENDO is the first bullshit-free online magazine for individuals with Endometriosis by individuals with Endometriosis. It's time to #BreakTheSilence Internacional 705
5
62 @CheerUpEleanor
(eleanor)
28 Nanny, writer, procrastinator, and #endo sister Internacional 182
1
63 @Michele68836887
(Michele Jansz)
28 Supports Excision lending to pathology for Endometriosis patients. #sideeffcts #chartnotedisastergirl #endometriosis *opinions expressed are my own* Internacional 248
1
64 @PoliceEndoWG
(National Police Endometriosis Worki)
27 We are a group of police officers from around England & Wales, working together to spread awareness of endometriosis & build support networks within policing. Internacional 398
5
65 @m_endometriosis
(Meddik Endometriosis)
27 Questions, advice, news & research on Meddik #Endometriosis. Join Meddik #endosisters at Internacional 137
6
66 @EndoAlberta
(Endo Alberta )
27 Endometriosis Alberta Support Group. Providing support, advocating and giving a voice to those suffering with Endometriosis - Instagram: @ endo.alberta Internacional 450
4
67 @kibarron
(Kenneth I Barron, MD)
27 Minimally invasive #gynecologic #surgeon, #pelvicpain and #endometriosis specialist at the Center for Advanced Gynecology. Internacional 814
7
68 @EndoUncovered
(Endo Uncovered)
27 “Uncover the truth that already exists within the endometriosis community”. Our mission is to reveal the injustices and TRUTH within the Endo Community. Internacional 604
3
69 @EndoWarriors
(Endo Warriors)
26 We're a support organization for those with endometriosis. Based in NYC. Stand Together, Fight Together. Internacional 5,3K
55
70 @endocansupport
(Endometriosis Canada Support)
26 Support for all Endo Warriors. You are strong, beautiful and fighting a war. We will be your soldiers standing behind you, always ready to help you fight! Internacional 282
1
71 @Endomarch_Wales
(EndoMarchWales)
26 The Wales legs of @WWEndoMarch at #Mold & #Cardiff. Raising awareness of #endometriosis, the debilitating condition that affects 1 in 10 women. #EndoMarch Internacional 590
7
72 @Endoandpcosbb
(Barbados Association of Endometrios)
26 Increasing Endometriosis & polycystic ovarian syndrome awareness and providing support in Barbados. Email: endoassociationofbdos@gmail.com Internacional 594
11
73 @Endo_Jenn
(Jenn Schropp)
25 Endometriosis & MS Patient Advocate - Writer - Photographer - Dogmom - Womens Rights Are Human Rights WEGO Finalist 2021 Views are my own. Internacional 1,7K
7
74 @endomx
(Endometriosis Mexico)
25 La endometriosis es una enfermedad que no tiene cura, habemos más de 7 millones de mexicanas afectadas, por favor, ¡ayúdanos a difundir! Internacional 1,5K
20
75 @EndoDundee
(Endometriosis UK Dundee Support Gro)
25 Support group covering Tayside and surrounding areas for those with suspected or diagnosed Endometriosis run by @ChickyC1988 https://t.co/aMp4RYC8l5 Internacional 1,3K
5
76 @keisha_meek
(Keisha Meek )
25 Founder of National Endometriosis Survivors Support https://t.co/DYxPf9YSGt All views are my own. Internacional 1,3K
6
77 @blog_endo
(EndoGirlsBlog)
25 Board Certified Patient Advocate Educating & Empowering Endometriosis patients Internacional 362
2
78 @EndoEdition
(EndoEdition)
24 Reliable endometriosis facts, research, and awareness Advocating the largest women's health crisis of our time, also affecting trans & non-binary. Internacional 523
2
79 @endosucks
(Endo Sucks!)
24 The original Endo Sucks! A place to connect those with #endometriosis, #adenomyosis, #PCOS & more. Spread the word & join #Facebook: https://t.co/pgmnNfAGVz España 3,1K
37
80 @Gabriel_Hrnandz
(Gabriel Hernández M.)
23 25. Venezolano. INTJ. UDO-Medicina. Tenis, fútbol y otros deportes. Redactor en https://t.co/uSDcg745uY Madrid 1,2K
9
81 @carsonsarahj
(Sarah Holdsworth-Carson)
23 Research Program Manager, Julia Argyrou Endometriosis Centre @epworth @unimelb. Research interests include women's health: endometriosis and uterine disorders. Internacional 291
3
82 @endospain
(EndoSpain)
23 Federación española de afectadas de #Endometriosis. Entidades promotoras: @AENDOVALENCIA · @AEXAE_ · @ENDOEUSKADI · @ENDOMADRID_ Se suman #AMEFBurgos #ENDOMasRM Madrid 259
4
83 @theendofound
(The Endometriosis Foundation)
22 Our vision is a future where Endometriosis is recognised and understood Internacional 2,1K
14
84 @EndomarchLondon
(EndoMarch London)
22 The Official EndoMarch London Twitter page Internacional 1,6K
18
85 @PeelEndo
(Peel Endometriosis Support Group)
22 Support group for those affected by #endometriosis. Email peelendo@gmail.com. Follow our sister account @endoevents. Internacional 543
2
86 @EndoNed
(EndoAwarenessNL/BE)
22 Endometriose Awareness Nederland/België verschaft informatie met als doel inzicht en ondersteuning te bieden aan vrouwen met Endometriose Internacional 231
2
87 @EndoMarchSpain
(EndoMarcha España)
22 Movimiento por la Endometriosis a partir de la Marcha Mundial de Un Millón de Mujeres de marzo 2014. Muévete por la Endo; haz oir tu voz el 28-marzo-2015. Internacional 901
15
88 @EndoMarchItaly
(Endomarch Team Italy)
21 supportata da A.L.I.C.E. odv Internacional 404
0
89 @endoinvisible
(Endo InVisible)
21 Working to provide #awareness, #education & access to #excision for those with #endometriosis. Making #invisible #illness visible. #endometriose Internacional 1,4K
11
90 @62091cpcxlen
(Endometriosis)
21 Internacional 12
1
91 @EndoUKStaffs
(EndoUK Staffordshire)
21 Endometriosis UK - Staffordshire Group STAFFORDSHIRE, UK - STOKE-ON-TRENT Living with and fighting Endo one supportive friend at a time Internacional 186
2
92 @SurvivorEndo
(Endo Survivor I Arundathi Yasok)
21 Stage iv #endometriosis I 5 years pain free I Certified Hatha #Yoga therapist I #Author of Confessions of an Endo girl I #writing 2nd book I Breaking Taboos Internacional 220
1
93 @APEOnlus
(A.P.E. ODV)
21 Associazione Progetto #Endometriosi FARE INFORMAZIONE PER CREARE CONSAPEVOLEZZA Internacional 2,4K
26
94 @EndoBlog
(ENDOMETRIOSIS BLOG)
20 From New Zealand striving to build awareness around the world about the disease #Endometriosis. Empowering women and those who support them with #endo knowledge Internacional 4,0K
36
95 @endoestadistica
(Endometriosis España)
20 adenomiosis dolor nutri fisio psi fertilidad fármacos menopausia salud pública género investigación #PatientsIncluded.Paciente con voz y blog.Miembra de RedCAPS Internacional 1,9K
125
96 @EndometriosisPA
(Asociación Endometriosis Panamá)
20 Héroe por Panamá 2017 Educando y creando conciencia sobre Endometriosishttps://t.co/rXvP0sC8FS Internacional 2,8K
30
97 @endoevents
(Endometriosis Events)
20 Canadian charity raising awareness for #endometriosis. We host events, educate youth, and facilitate monthly support groups. endometriosisevents@gmail.com Internacional 641
1
98 @ReadEndo
(EndoRead)
19 Blog and fundraiser for endometriosis research and awareness. Please see site for info. Internacional 338
4
99 @Lpezbenavid
(Andres López Benavides)
19 Me registre en twitter por pasatiempo pero con el correr del tiempo y por mi hija lo hago para difundir la enfermedad de #Endometriosis. Internacional 160
2
100 @ef_hou
(EFHou)
19 Endometriosis Foundation of Houston. Our mission is to raise awareness and educate our community about endometriosis. Internacional 507
2
Previo | SiguienteVer todos | Usuarios: 257
Actualizado: 25-09-2022

Las mujeres con endometriosis es uno de los colectivos de enfermos más desprotegidos que hay en la actualidad. Pese a que esta enfermedad suele producir dolores incapacitantes nunca se concede una baja por este motivo. Los sucesivos gobiernos de España contemporizan mientras más de un millón de mujeres sufre con cada menstruación dolor pélvico, calambres abdominales y otras complicaciones como la destrucción de algunos de sus órganos y en muchas ocasiones la infertilidad.

Ya han pasado más de 10 años desde la primera PNL que se presentó en el Congreso de los Diputados pero apenas han habido avances para las pacientes. El tiempo medio de diagnóstico es de más de 5 años, no se han abierto unidades de referencia y todo sigue igual.

Por ello este colectivo de mujeres enfermas se han organizado en Internet y la prueba de ello es su gran actividad en redes, foros y asociaciones de pacientes.

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