La endometriosis es una enfermedad crónica que padecen entre un 10 y un 15% de las mujeres. Toda la información sobre la enfermedad la tienes en el enlace anterior. En esta sección de TopInfluencers te ofrecemos una lista de las cuentas más influyentes en Redes Sociales relacionadas con la endometriosis.
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Endometriosis (257)
| N. | Nombre | Score | Text | Local. | 
| Lists | |
|---|---|---|---|---|---|---|---|
| 1 |  |
@Endofound (Endometriosis Foundation of America) |
54 | The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark endometriosis research. | Internacional | 15,1K |
152 |
| 2 |  |
@drfcarmona (Dr Francisco Carmona) |
50 | #Ginecólogo de Barcelona en @WomensCD_. Cirugía Ginecológica por Laparoscopia, #Endometriosis, Suelo Pélvico, Cáncer y Reproducción Asistida. Tel 934160606 | Barcelona | 2,2K |
42 |
| 3 |  |
@MathewLeonardi (Mathew Leonardi MD PhD ) |
49 | MIG surgeon & sonologist @McMasterU; "Diagnosis is Therapy" PhD @Sydney_Uni diagnosis/management of #endometriosis. Young Ambassador @WES & #NGen @ISUOG | Internacional | 3,8K |
26 |
| 4 |  |
@Asso_EndoFrance (EndoFrance) |
49 | Soutenir Informer Agir #Agréée par le #MinistèredelaSanté "Les idées reçues contre l'#endométriose"#LaetitiaMilot #ThomasRamos #financelarecherche #1erSPOTtv | Internacional | 6,7K |
52 |
| 5 |  |
@EndoWhat (ENDO WHAT) |
49 | Almost 200 million people have the most common, devastating disease you may not know. @endowhat on FB, Insta + Twitter. New film BELOW THE BELT coming soon! | Internacional | 4,7K |
42 |
| 6 |  |
@EndometriosisAu (EndometriosisAust) |
48 | Endometriosis Australia, a national charity endeavours, to increase recognition of endometriosis, provide education programs, and funding for research. | Internacional | 4,3K |
55 |
| 7 |  |
@BattleWithEndo (Anna ) |
47 | Oversharer | Stage IV Endometriosis | Mama & Wife | Co founder of Menstrual Health Project | @BeYouPeriod Ambassador | | Internacional | 2,2K |
50 |
| 8 |  |
@endovikinga (EndoVikinga) |
47 | Escribo sobre #endometriosis #dolorcrónico o #migraña porque son parte de mí pero, soy mucho más. Soy #endovikinga endovikinga@endovikinga.com | Internacional | 5,2K |
82 |
| 9 |  |
@endo_ireland (Endometriosis Association of Irelan) |
45 | The Endometriosis Association of Ireland gives support & info to those living with and affected by endometriosis and adenomyosis. CRN 20021672 info@endo.ie | Internacional | 5,4K |
59 |
| 10 |  |
@TheEndoNetwork (The Endometriosis Network Canada) |
45 | Registered charity in Canada dedicated to raising awareness of endometriosis and providing support and educational resources to those it affects. | Internacional | 2,4K |
42 |
| 11 |  |
@WWEndoMarch (Worldwide EndoMarch) |
45 | The EndoMarch global movement has ignited an international endometriosis uprising & is leading the way in the fight for Endometriosis Health Care Reforms. | Internacional | 4,2K |
50 |
| 12 |  |
@Endocolombia (EndometriosisColombia) |
44 | Asociación colombiana de endometriosis e infertilidad. Luchamos por garantías en nuestra salud y dignidad menstrual. | Colombia | 1,4K |
14 |
| 13 |  |
@CamranNezhatMD (Camran Nezhat, M.D.) |
44 | Dr. Camran Nezhat is the director of Camran Nezhat Institute & has been called the father of modern-day operative laparoscopy for inventing Video-Endoscope. | Internacional | 2,1K |
33 |
| 14 |  |
@Endometriosis11 (Endometriosis Cure) |
44 | Detailed information about endometriosis and practical methods to overcome it. | Internacional | 12,4K |
52 |
| 15 |  |
@WorldEndoSoc (WES) |
43 | The World Endometriosis Society (WES) leads the way in endometriosis and adenomyosis and is delivering the 15th World Congress on Endometriosis (WCE2023) | Internacional | 3,0K |
32 |
| 16 |  |
@EndoLadyUK (Endo The World) |
43 | I'm just a girl tweeting and blogging about life with #endometriosis and #adenomyosis. Trying to figure out how to lead a good life despite chronic illness. | Internacional | 2,9K |
50 |
| 17 |  |
@TheCurlyLucy (Miss Lucy #TheBigSnip40) |
43 | Artist. Curly. Mophead. #Endometriosis. Politics. Tea. Cats. Mildly sweary. Adorable. | Internacional | 2,4K |
98 |
| 18 |  |
@redinfertiles (Red Infertiles) |
43 | Asociación nacional sin ánimo de lucro. Punto de encuentro para pacientes con #infertilidad. Dando VOZ a la InfertilidadNo estás sola. | España | 3,9K |
33 |
| 19 |  |
@PelvicPainEndo (Pelvic Pain & Endometriosis BC) |
42 | Leader in Endometriosis Care & Research Medical Director @DrAllaire https://t.co/FMT5FCP7nK Research Director @DrPaulYong https://t.co/QvxNnACFEi | Internacional | 1,4K |
21 |
| 20 |  |
@GeorgeCondous (george condous) |
42 | Gynaecologist Endometriosis Imaging Laparoscopist Academic #endometriosis #gynaecology #sydneyendometriosis Views expressed personal https://t.co/fraHpC1rTX | Internacional | 1,7K |
7 |
| 21 |  |
@endomeque (Endomequé) |
42 | Queremos dar a conocer la #endometriosis y ayudar a su investigación #AcabemosConElTabuDeLaEndometriosis | Internacional | 1,4K |
6 |
| 22 |  |
@WERF_research (WERF) |
42 | The World Endometriosis Research Foundation (WERF) conducts international multi-centre studies to improve knowledge about and treatments for endometriosis. | Internacional | 2,1K |
25 |
| 23 |  |
@theendoco (The Endometriosis Coalition) |
41 | The Endometriosis Coalition works to raise awareness, promote reliable education and increase research funding for endometriosis • 501(c)(3) | Internacional | 734 |
10 |
| 24 |  |
@EndoSurvivors (EndometriosisNigeria) |
40 | Non-profit organization raising awareness about endometriosis and promoting menstrual health in Nigeria | Internacional | 628 |
4 |
| 25 |  |
@EsEndometriosis (EsEndo) |
40 | Cuenta dirigida a afectadas de endometriosis, entorno, profesionales sanitarios y toda institución u organización interesada en esa patología y sus efectos | España | 2,5K |
22 |
| 26 |  |
@adaecestatal (ADAEC Endometriosis) |
39 | Asociación de afectadas de endometriosis. https://t.co/7VUwRBWPQp Instagram: adaecestatal | Internacional | 1,6K |
8 |
| 27 |  |
@MLouiseHull (Prof (mary) Louise Hull) |
39 | Fertility specialist doctor, Endometriosis researcher and Adolescent gynaecologist advocating for best reproductive care in all health sectors | Internacional | 1,5K |
8 |
| 28 |  |
@Endo_Support (Endo Support) |
38 | Endo Support, est. 1996, organization focuses on Endometriosis resources and medical guidance. Worldwide Endo March (Endometriosis) ~Team MN USA #EndoDidYouKnow | USA | 3,7K |
47 |
| 29 |  |
@FTWW_Wales (FTWW Wales) |
38 | Fair Treatment for the Women of Wales. Our aim is access to optimal healthcare for women in Wales. Our campaigns include #endometriosis #miscarriage #menopause. | Internacional | 2,3K |
0 |
| 30 |  |
@DrPaulYong (Paul Yong) |
37 | Research Director and Gynaecologist @pelvicpainendo // Associate Professor @ubcOBGYN | Internacional | 512 |
3 |
| 31 |  |
@FurrowedFox (Fox - Burn it all down ) |
37 | Reproductively challenged. Lady bits are FUBARed. Ectopic x2. Failed surrogacy. Adoptive mom. Endo/Adeno/Hyster. ProChoice Feminist. | Internacional | 1,4K |
67 |
| 32 |  |
@EndoUpdateBlog (EndometriosisUpdate) |
37 | Making research into endometriosis accessible to everyone. Run by Dr Matthew Rosser, University of Warwick | Internacional | 5,4K |
50 |
| 33 |  |
@endomadrid (Asociación ENDOMadrid) |
36 | Trabajamos por los derechos y el bienestar de las afectadas de #endometriosis y #adenomiosis de la Comunidad de Madrid | Internacional | 1,9K |
42 |
| 34 |  |
@exppect (EXPPECT Edinburgh) |
36 | News, comments and advice from Edinburgh’s EXPPECT Centre for Pelvic Pain and Endometriosis @MRC_CRH @horne_research @p_saunder | Internacional | 1,7K |
7 |
| 35 |  |
@citizen_endo (Citizen Endo) |
34 | Citizen & data science research for an endometriosis cure. Maker of Phendo app to track endo. https://t.co/XDQr2Wco4P | Internacional | 1,3K |
42 |
| 36 |  |
@MyEndoTeam (MyEndometriosisTeam) |
34 | The social network & online support group for people living with #Endometriosis with more than 110,000 members! You are not alone! #EndoSisters #EndEndo | Internacional | 2,7K |
0 |
| 37 |  |
@endostats (EndoStats) |
34 | Endometriosis awareness, data science, microbiome research and global policy. Simplifying statistics so solutions can be found. @julieprilling #systemicchange | Internacional | 2,2K |
23 |
| 38 |  |
@newsforendo (EndoNews) |
34 | Our goal at https://t.co/3mB3JZLss7 is to raise awareness and support women who are struggling in their battle against endometriosis. | Internacional | 446 |
6 |
| 39 |  |
@aendoeeu (A Endometriose e Eu) |
34 | Criado pela jornalista Caroline Salazar, o blog é o pioneiro em retratar o dia a dia de uma portadora e a lutar pelos direitos das endomulheres brasileiras | Brasil | 933 |
5 |
| 40 |  |
@EndoSRN (Int'l Endometriosis Social Research) |
34 | International network sharing & promoting social science & humanities research on endometriosis. Coordinator: Dr A.Weckesser (annalise.weckesser@bcu.ac.uk) | Internacional | 492 |
1 |
| 41 |  |
@official_seud (SEUD) |
33 | Society of Endometriosis & Uterine Disorders. 9th SEUD Congress | MARCH, 16-18 | Abu Dhabi, UAE #SEUD2023 | Internacional | 1,3K |
17 |
| 42 |  |
@endovzla (Endometriosis) |
33 | La endometriosis es una enfermedad crónica, invisible para todo aquel que no la padece, pero muy real para muchas mujeres, sin embargo, no están solas. | Internacional | 477 |
6 |
| 43 |  |
@EndoCatalunya (Endo Catalunya) |
33 | https://t.co/qjoHxkazds https://t.co/YlOevIbAm3 | España | 2,0K |
32 |
| 44 |  |
@suzieassanie (Sawsan As-Sanie, MD MPH) |
32 | MIS GYN Surgeon @umichmedicine working to improve evidence-based, patient-centered care for #endometriosis #pelvicpain #adenomyosis #uterinefibroids. views=own | Internacional | 883 |
12 |
| 45 |  |
@Endo_HU (Endometriosis.net) |
32 | A community for people affected by endometriosis. Learn, share, and connect with peers and healthcare professionals. | Internacional | 652 |
2 |
| 46 |  |
@NatashaLeighOrr (Natasha Orr) |
32 | Endometriosis and Sex Researcher // PhD Candidate @UBC // Public Scholar @UBC // If you can’t remember my name, just say “chocolate”... I’ll turn around | Internacional | 507 |
4 |
| 47 |  |
@EndoFoundKE (Endometriosis Foundation of Kenya) |
32 | Internacional | 726 |
0 | |
| 48 |  |
@EndoActCanada (EndoAct Canada) |
32 | We drive policy action on endometriosis in Canada Susciter des initiatives pour l’endométriose au Canada | Internacional | 440 |
2 |
| 49 |  |
@endometriosisGh (Ghana Endometriosis) |
31 | Endometriosis Foundation Ghana is a Non-Profit Organisation focused on creating awareness on Endometriosis & providing relevant support to the people affected. | Internacional | 836 |
13 |
| 50 |  |
@EndoHeal (WendyKLaidlaw@Endo) |
31 | Best selling author, entrepreneur, podcast host, empowering women around the world on how to heal their endometriosis naturally using the Laidlaw Protocols. | Internacional | 323 |
5 |
| 51 |  |
@endopr2010 (Endometriosis PR) |
31 | Foundation for Patients with Endometriosis in Puerto Rico that provides information and support | Internacional | 1,6K |
26 |
| 52 |  |
@endowestlothian (Endo Warriors WL) |
31 | Independent Scottish Awareness & Action Support Group. We Raise Awareness Globally For Endometriosis, This Extremely Ugly Disease Affects 1in10 | Internacional | 2,7K |
11 |
| 53 |  |
@EndoForum (#FamilyMatters-EndTravelBan ) |
31 | Internacional | 4,1K |
54 | |
| 54 |  |
@Kathleen_M_King (Kathleen King) |
31 | #endometriosis #adenomyosis advocate. Medical Scientist Societal Champion/Patient Advocate @CailinAI Learn more at https://t.co/Xt7B6RCwfA | Internacional | 1,5K |
18 |
| 55 |  |
@MulherEndo (MulherEndo) |
31 | Associação Portuguesa de Apoio a Mulheres com Endometriose | Internacional | 692 |
10 |
| 56 |  |
@EndoUKWales (Endometriosis UK Wales gbwls) |
30 | Official Wales specific @EndometriosisUK account. Providing support services, information and a community for those affected by endometriosis living in Wales. | Internacional | 256 |
5 |
| 57 |  |
@EuroEndoLeague (European Endometriosis League) |
30 | The European Endometriosis League supports research and enhances public awareness throughout the European countries in the field of endometriosis since 2005. | Internacional | 1,4K |
11 |
| 58 |  |
@Esprit2T (ESPriT2 Trial) |
29 | Laparoscopic removal of superficial peritoneal endometriosis and its effect on health outcomes @horne_research | Internacional | 190 |
1 |
| 59 |  |
@EndometriosisSA ( | Endowarrior) |
29 | ‘creating a safe space for healing & wellness’ founder: @Bontle_M • endometriosis awareness • ig: https://t.co/KVBz1Gadm0 | Internacional | 366 |
3 |
| 60 |  |
@endoAPPG (APPG on Endometriosis) |
29 | #Endometriosis APPG official twitter account. Chaired by Hannah Bardell MP & Emma Hardy MP. Email us on: endometriosisappg@endometriosis-uk.org | Internacional | 1,2K |
7 |
| 61 |  |
@DOYOUENDO (DO YOU ENDO) |
28 | DO YOU ENDO is the first bullshit-free online magazine for individuals with Endometriosis by individuals with Endometriosis. It's time to #BreakTheSilence | Internacional | 705 |
5 |
| 62 |  |
@CheerUpEleanor (eleanor) |
28 | Nanny, writer, procrastinator, and #endo sister | Internacional | 182 |
1 |
| 63 |  |
@Michele68836887 (Michele Jansz) |
28 | Supports Excision lending to pathology for Endometriosis patients. #sideeffcts #chartnotedisastergirl #endometriosis *opinions expressed are my own* | Internacional | 248 |
1 |
| 64 |  |
@PoliceEndoWG (National Police Endometriosis Worki) |
27 | We are a group of police officers from around England & Wales, working together to spread awareness of endometriosis & build support networks within policing. | Internacional | 398 |
5 |
| 65 |  |
@m_endometriosis (Meddik Endometriosis) |
27 | Questions, advice, news & research on Meddik #Endometriosis. Join Meddik #endosisters at | Internacional | 137 |
6 |
| 66 |  |
@EndoAlberta (Endo Alberta ) |
27 | Endometriosis Alberta Support Group. Providing support, advocating and giving a voice to those suffering with Endometriosis - Instagram: @ endo.alberta | Internacional | 450 |
4 |
| 67 |  |
@kibarron (Kenneth I Barron, MD) |
27 | Minimally invasive #gynecologic #surgeon, #pelvicpain and #endometriosis specialist at the Center for Advanced Gynecology. | Internacional | 814 |
7 |
| 68 |  |
@EndoUncovered (Endo Uncovered) |
27 | “Uncover the truth that already exists within the endometriosis community”. Our mission is to reveal the injustices and TRUTH within the Endo Community. | Internacional | 604 |
3 |
| 69 |  |
@EndoWarriors (Endo Warriors) |
26 | We're a support organization for those with endometriosis. Based in NYC. Stand Together, Fight Together. | Internacional | 5,3K |
55 |
| 70 |  |
@endocansupport (Endometriosis Canada Support) |
26 | Support for all Endo Warriors. You are strong, beautiful and fighting a war. We will be your soldiers standing behind you, always ready to help you fight! | Internacional | 282 |
1 |
| 71 |  |
@Endomarch_Wales (EndoMarchWales) |
26 | The Wales legs of @WWEndoMarch at #Mold & #Cardiff. Raising awareness of #endometriosis, the debilitating condition that affects 1 in 10 women. #EndoMarch | Internacional | 590 |
7 |
| 72 |  |
@Endoandpcosbb (Barbados Association of Endometrios) |
26 | Increasing Endometriosis & polycystic ovarian syndrome awareness and providing support in Barbados. Email: endoassociationofbdos@gmail.com | Internacional | 594 |
11 |
| 73 |  |
@Endo_Jenn (Jenn Schropp) |
25 | Endometriosis & MS Patient Advocate - Writer - Photographer - Dogmom - Womens Rights Are Human Rights WEGO Finalist 2021 Views are my own. | Internacional | 1,7K |
7 |
| 74 |  |
@endomx (Endometriosis Mexico) |
25 | La endometriosis es una enfermedad que no tiene cura, habemos más de 7 millones de mexicanas afectadas, por favor, ¡ayúdanos a difundir! | Internacional | 1,5K |
20 |
| 75 |  |
@EndoDundee (Endometriosis UK Dundee Support Gro) |
25 | Support group covering Tayside and surrounding areas for those with suspected or diagnosed Endometriosis run by @ChickyC1988 https://t.co/aMp4RYC8l5 | Internacional | 1,3K |
5 |
| 76 |  |
@keisha_meek (Keisha Meek ) |
25 | Founder of National Endometriosis Survivors Support https://t.co/DYxPf9YSGt All views are my own. | Internacional | 1,3K |
6 |
| 77 |  |
@blog_endo (EndoGirlsBlog) |
25 | Board Certified Patient Advocate Educating & Empowering Endometriosis patients | Internacional | 362 |
2 |
| 78 |  |
@EndoEdition (EndoEdition) |
24 | Reliable endometriosis facts, research, and awareness Advocating the largest women's health crisis of our time, also affecting trans & non-binary. | Internacional | 523 |
2 |
| 79 |  |
@endosucks (Endo Sucks!) |
24 | The original Endo Sucks! A place to connect those with #endometriosis, #adenomyosis, #PCOS & more. Spread the word & join #Facebook: https://t.co/pgmnNfAGVz | España | 3,1K |
37 |
| 80 |  |
@Gabriel_Hrnandz (Gabriel Hernández M.) |
23 | 25. Venezolano. INTJ. UDO-Medicina. Tenis, fútbol y otros deportes. Redactor en https://t.co/uSDcg745uY | Madrid | 1,2K |
9 |
| 81 |  |
@carsonsarahj (Sarah Holdsworth-Carson) |
23 | Research Program Manager, Julia Argyrou Endometriosis Centre @epworth @unimelb. Research interests include women's health: endometriosis and uterine disorders. | Internacional | 291 |
3 |
| 82 |  |
@endospain (EndoSpain) |
23 | Federación española de afectadas de #Endometriosis. Entidades promotoras: @AENDOVALENCIA · @AEXAE_ · @ENDOEUSKADI · @ENDOMADRID_ Se suman #AMEFBurgos #ENDOMasRM | Madrid | 259 |
4 |
| 83 |  |
@theendofound (The Endometriosis Foundation) |
22 | Our vision is a future where Endometriosis is recognised and understood | Internacional | 2,1K |
14 |
| 84 |  |
@EndomarchLondon (EndoMarch London) |
22 | The Official EndoMarch London Twitter page | Internacional | 1,6K |
18 |
| 85 |  |
@PeelEndo (Peel Endometriosis Support Group) |
22 | Support group for those affected by #endometriosis. Email peelendo@gmail.com. Follow our sister account @endoevents. | Internacional | 543 |
2 |
| 86 |  |
@EndoNed (EndoAwarenessNL/BE) |
22 | Endometriose Awareness Nederland/België verschaft informatie met als doel inzicht en ondersteuning te bieden aan vrouwen met Endometriose | Internacional | 231 |
2 |
| 87 |  |
@EndoMarchSpain (EndoMarcha España) |
22 | Movimiento por la Endometriosis a partir de la Marcha Mundial de Un Millón de Mujeres de marzo 2014. Muévete por la Endo; haz oir tu voz el 28-marzo-2015. | Internacional | 901 |
15 |
| 88 |  |
@EndoMarchItaly (Endomarch Team Italy) |
21 | supportata da A.L.I.C.E. odv | Internacional | 404 |
0 |
| 89 |  |
@endoinvisible (Endo InVisible) |
21 | Working to provide #awareness, #education & access to #excision for those with #endometriosis. Making #invisible #illness visible. #endometriose | Internacional | 1,4K |
11 |
| 90 |  |
@62091cpcxlen (Endometriosis) |
21 | Internacional | 12 |
1 | |
| 91 |  |
@EndoUKStaffs (EndoUK Staffordshire) |
21 | Endometriosis UK - Staffordshire Group STAFFORDSHIRE, UK - STOKE-ON-TRENT Living with and fighting Endo one supportive friend at a time | Internacional | 186 |
2 |
| 92 |  |
@SurvivorEndo (Endo Survivor I Arundathi Yasok) |
21 | Stage iv #endometriosis I 5 years pain free I Certified Hatha #Yoga therapist I #Author of Confessions of an Endo girl I #writing 2nd book I Breaking Taboos | Internacional | 220 |
1 |
| 93 |  |
@APEOnlus (A.P.E. ODV) |
21 | Associazione Progetto #Endometriosi FARE INFORMAZIONE PER CREARE CONSAPEVOLEZZA | Internacional | 2,4K |
26 |
| 94 |  |
@EndoBlog (ENDOMETRIOSIS BLOG) |
20 | From New Zealand striving to build awareness around the world about the disease #Endometriosis. Empowering women and those who support them with #endo knowledge | Internacional | 4,0K |
36 |
| 95 |  |
@endoestadistica (Endometriosis España) |
20 | adenomiosis dolor nutri fisio psi fertilidad fármacos menopausia salud pública género investigación #PatientsIncluded.Paciente con voz y blog.Miembra de RedCAPS | Internacional | 1,9K |
125 |
| 96 |  |
@EndometriosisPA (Asociación Endometriosis Panamá) |
20 | Héroe por Panamá 2017 Educando y creando conciencia sobre Endometriosishttps://t.co/rXvP0sC8FS | Internacional | 2,8K |
30 |
| 97 |  |
@endoevents (Endometriosis Events) |
20 | Canadian charity raising awareness for #endometriosis. We host events, educate youth, and facilitate monthly support groups. endometriosisevents@gmail.com | Internacional | 641 |
1 |
| 98 |  |
@ReadEndo (EndoRead) |
19 | Blog and fundraiser for endometriosis research and awareness. Please see site for info. | Internacional | 338 |
4 |
| 99 |  |
@Lpezbenavid (Andres López Benavides) |
19 | Me registre en twitter por pasatiempo pero con el correr del tiempo y por mi hija lo hago para difundir la enfermedad de #Endometriosis. | Internacional | 160 |
2 |
| 100 |  |
@ef_hou (EFHou) |
19 | Endometriosis Foundation of Houston. Our mission is to raise awareness and educate our community about endometriosis. | Internacional | 507 |
2 |
| Previo | Siguiente | Ver todos | Usuarios: 257 Actualizado: 25-09-2022 |
Las mujeres con endometriosis es uno de los colectivos de enfermos más desprotegidos que hay en la actualidad. Pese a que esta enfermedad suele producir dolores incapacitantes nunca se concede una baja por este motivo. Los sucesivos gobiernos de España contemporizan mientras más de un millón de mujeres sufre con cada menstruación dolor pélvico, calambres abdominales y otras complicaciones como la destrucción de algunos de sus órganos y en muchas ocasiones la infertilidad.
Ya han pasado más de 10 años desde la primera PNL que se presentó en el Congreso de los Diputados pero apenas han habido avances para las pacientes. El tiempo medio de diagnóstico es de más de 5 años, no se han abierto unidades de referencia y todo sigue igual.
Por ello este colectivo de mujeres enfermas se han organizado en Internet y la prueba de ello es su gran actividad en redes, foros y asociaciones de pacientes.
(1 votos, promedio: 5,00 out of 5)
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