La endometriosis es una enfermedad crónica que padecen entre un 10 y un 15% de las mujeres. Toda la información sobre la enfermedad la tienes en el enlace anterior. En esta sección de TopInfluencers te ofrecemos una lista de las cuentas más influyentes en Redes Sociales relacionadas con la endometriosis.
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Endometriosis (253)
| N. | Usuario | Nombre | Texto | Location | Web |
|---|---|---|---|---|---|
| 1 | @redinfertiles | Red Infertiles | Asociacin nacional sin nimo de lucro. Punto de encuentro para pacientes con #infertilidad. Dando VOZ a la InfertilidadNo ests sola. | España | t.co |
| 2 | @AEndometriosis | ADAEC.Endometriosis | Asociacion de Afectadas de Endometriosis CibernticaFundada en el ao 2006Numero de Registro:596783 | España | |
| 3 | @endometriosis8 | endometriosis | proyecto endometriosis/ cura holistica, cirugia del alma, comprender, abrazar y transformar la enfermedad para una mejor calidad de vida. | Internacional | t.co |
| 4 | @endometriosis_ | Endo Sisters | Fighting endometriosis every day. Follow me on instagram: endosisters | Internacional | t.co |
| 5 | @EndoVivePlena | Endo Vive Plena | Revista especializada en clicos menstruales irregulares y EndometriosisAyuda a mujeres con Endometriosis y enfermedades relacionadas a la misma | Internacional | t.co |
| 6 | @sd419agueda | Agueda Endometriosis | Internacional | ||
| 7 | @EndoEnfurecidas | ENDOENFURECIDAS 2017 | cuenta inspiracional GAMBERRA para las que nos negamos a sufrir en silencio la violencia ginecolgica.Lena, Dolly y Susan nuestras musas #endo | España | |
| 8 | @_theartoftrying | Kyra W-M | Just a woman with endometriosis and Adenomyosis , venting and sharing my experiences . | Internacional | t.co |
| 9 | @theendoco | The Endometriosis Coalition | The Endometriosis Coalition is a not-for-profit working to raise awareness, promote reliable education and increase research funding[501(c)(3) pending] | Internacional | t.co |
| 10 | @SofVersailles | ArtEndometriosis | Endo Warrior, Progressive, Art lover, dark and lovely. What else do you need to knowArty account of @YellowLightPro1 | Internacional | |
| 11 | @pain_pelvic | Endometriosis & Pelvic Pain Center | The Endometriosis & Pelvic Pain Center is a division of RADfertility, a nationwide leader in reproductive medicine. | Internacional | t.co |
| 12 | @MulherEndo | MulherEndo | Associao Portuguesa de Apoio a Mulheres com Endometriose | Internacional | t.co |
| 13 | @Lpezbenavid | Andres López Benavides | Me registre en twitter por pasatiempo pero con el correr del tiempo y por mi hija lo hago para difundir la enfermedad de #Endometriosis. | Internacional | t.co |
| 14 | @JuntosporlaEndo | Juntos por la Endo | Juntos por la Endometriosis es un grupo de apoyo de la fundacin Juntos Forjando un Mundo Mejor A.C. para difundir info y apoyar a mujeres con ENDOMETRIOSIS | Internacional | t.co |
| 15 | @GeorgeCondous | george condous | Gynaecologist Endometriosis Imaging Laparoscopist Academic #endometriosis #gynaecology #sydneyendometriosis Views expressed personal https://t.co/Z4t7TjtSmW | Internacional | |
| 16 | @endo_toronto | Endometriosis Toronto Warrior | Stage 4 Endometriosis warrior- born and raised in Toronto Lets Brunch charity event is on Nov 10th- Raising Awareness for endo..Get your tickets today xo | Internacional | t.co |
| 17 | @EndoWarriorsSA | Endometriosis ,South Africa | Endometriosis Awareness#Endometriosishttps://t.co/hw6O5lk7lf | Internacional | |
| 18 | @EndoSurvivors | EndometriosisNigeria | Non-profit organization raising awareness about endometriosis and promoting menstrual health in Nigeria | Internacional | |
| 19 | @EndoPowerDiet | EndoPowerDiet | The Endometriosis Power Diet gives you a personalized diet plan and thousands of recipes to help you eat better, feel better and live better with endometriosis. | USA | t.co |
| 20 | @Endometriosis_R | Endo Research | Knowledge is power! | Internacional | t.co |
| 21 | @EndoMeBad | EndoMeBad | Living my life with endometriosis. Advocate of Women's Reproductive Health as well as chit chatting about some of my foolishness from time to time. hehe =) | Internacional | |
| 22 | @EndohelpUK | Endometriosis Help | Health tweets and endo advice. Millions of women worldwide suffer from #Endometriosis, let's raise more awareness! Feel free to tweet me, don't suffer alone. | Internacional | |
| 23 | @Endocolombia | EndometriosisColombia | Asociacin colombiana de endometriosis e infertilidad | Colombia | t.co |
| 24 | @EndoAdenoCC | Endometriosis & Adenomyosis Care Collaborative | The is located at Newton-Wellesley Hospital and is comprised of clinicians and researchers treating and studying endometriosis and adenomyosis. | Internacional | t.co |
| 25 | @EAwareness_ | Endometriosis Awareness | Platform to improve nationwide awareness of the issue of endometriosis. | Internacional | |
| 26 | @CEndometriosis | Endometriosis.sc | Internacional | t.co | |
| 27 | @APEOnlus | A.P.E. ODV | Associazione Progetto #Endometriosi FARE INFORMAZIONE PER CREARE CONSAPEVOLEZZA | Internacional | t.co |
| 28 | @31femtruths | 31Femtruths | Our goal is to spread awareness for endometriosis and get as many endo-sister's stories and share them with the world. #31femtruths #1in10 #uniteEndo | Internacional | t.co |
| 29 | @RealTiffaniLong | Tiffani Long | Hi. Im Tiffani a fellow EndoWarrior. Mom. Wife. I am an organized, goofy, creative, social introvert that loves fashion, animals and helping others. | Internacional | t.co |
| 30 | @GCoPsicologos | G&Co. PSICOLOGOS | G & Co. Psiclogos, ubicados en Mxico D. F., rene a diferentes especialistas en el ramo de la psicologa. | México | t.co |
| 31 | @EndoSuffer | Kristi Vaughan | I am honest, trustworthy and loyal. I hate when people treat celebrities like they are gods, when they are human just like us, they just have better stories. | Internacional | |
| 32 | @DrPaulYong | Paul Yong | Research Director and Gynaecologist @pelvicpainendo // Associate Professor @ubcOBGYN | Internacional | t.co |
| 33 | @endovzla | Endometriosis | La endometriosis es una enfermedad crnica, invisible para todo aquel que no la padece, pero muy real para muchas mujeres, sin embargo, no estn solas. | Internacional | t.co |
| 34 | @__endometriosis | Endometriosis | Internacional | ||
| 35 | @EndoMarchSpain | EndoMarcha España | Movimiento por la Endometriosis a partir de la Marcha Mundial de Un Milln de Mujeres de marzo 2014. Muvete por la Endo, haz oir tu voz el 28-marzo-2015. | Internacional | |
| 36 | @EndometriosisAu | EndometriosisAust | Endometriosis Australia, a national charity endeavours, to increase recognition of endometriosis, provide education programs, and funding for research. | Internacional | t.co |
| 37 | @EndometriosisMe | EndometriosisAndMe | Endometriosis and Me is a site about living with endometriosis and exploring stategies for improving the quality of life for people living with the disease. | Internacional | t.co |
| 38 | @GalloExenia | #endometriosi | Internacional | ||
| 39 | @EsEndometriosis | EsEndo | Cuenta dirigida a afectadas de endometriosis, entorno, profesionales sanitarios y toda institucin u organizacin interesada en esa patologa y sus efectos | España | t.co |
| 40 | @WWEndoMarch | Worldwide EndoMarch | The EndoMarch global movement has ignited an international endometriosis uprising & is leading the way in the fight for Endometriosis Health Care Reforms. | Internacional | t.co |
| 41 | @thecrrs | The Center for Restorative Reproductive Surgery | Providing expert excision of endo and restoration of anatomy to relieve pain and enhance fertility. #endometriosis #endo #excision #infertility #Kongoasa #DrK | Internacional | t.co |
| 42 | @SintiEndoApoyo | SintiEndo Apoyo | Nuestro propsito es brindar herramientas psicolgicas y fsicas que permitan un mejorar tu bienestar y puedas descubrir que hay mas all de la Endometriosis | Internacional | t.co |
| 43 | @ntdefinedbyendo | notdefinedbyendo | Providing support to fellow endometriosis warriors Raising awareness about #Endo Advocating and Fighting for Research & Funding. | Internacional | |
| 44 | @MujeresMae | MAE Mujeres Argentinas con Endometriosis | Somos un grupo de Mujeres Argentinas con Endometriosis que unidas trabajamos para concientizar sobre la enfermedad y en promover una Ley que nos ampare. | Argentina | |
| 45 | @livingendolife | EndoLife | Spreading awareness, promoting advocacy information, providing support and initiating conversation for all things related to Endometriosis | Internacional | t.co |
| 46 | @InuHealth | Inu Health | On a mission of empowering women with endometriosis. Sign up for beta testing https://t.co/fPQxuXPnJ6 | Internacional | t.co |
| 47 | @Funendove | ENDOMETRIOSIS VENEZUELA | Fundacin sin fines de lucro para difundir informacin y apoyar a mujeres con ENDOMETRIOSIS.... | Internacional | t.co |
| 48 | @Endo_Support | Endo Support | Endo Support, est. 1996, organization focuses on Endometriosis resources and medical guidance. Worldwide Endo March (Endometriosis) ~Team MN USA #EndoDidYouKnow | USA | t.co |
| 49 | @EndoWarriors | Endo Warriors | We're a support organization for those with endometriosis. Based in NYC. Stand Together, Fight Together. | Internacional | t.co |
| 50 | @EndosurveyUsz | endosurvey_USZ | Coming soon: international survey about hormonal endometriosis treatment. Clinic for gynecology, University Hospital of Zurich, Switzerland #endometriosis | Internacional | t.co |
| 51 | @EndoPartnership | Endometriosis Partnership | Our mission is to promote Endometriosis Awareness and facilitate medical services and support for women and girls suffering from Endo in English and Spanish. | Internacional | t.co |
| 52 | @endometriosiswa | EndometriosisWA | A non-profit raising awareness, educating and supporting Western Australians affected by endometriosis. Previously EndoPerthSisters. | Internacional | t.co |
| 53 | @ENDOMALTA | ENDO SUPPORT GROUP | THE ENDO SUPPORT GROUP MALTAFor all those who have Endometriosis, know someone who has Endo and to help raise awareness, offer support and to help educate. | Internacional | |
| 54 | @EndoFoundKE | Endometriosis Foundation of Kenya | Internacional | ||
| 55 | @EndoclinicUK | The Endometriosis Clinic | The #Endometriosis Clinic is a private clinic based in the West Midlands, and is led by Consultant Gynaecological Surgeon Mr Christopher Mann. | Internacional | t.co |
| 56 | @EndoActCanada | EndoAct Canada | We drive policy action on endometriosis in Canada Susciter des initiatives pour lendomtriose au Canada | Internacional | t.co |
| 57 | @DOYOUENDO | DO YOU ENDO | DO YOU ENDO is the first bullshit-free online magazine for individuals with Endometriosis by individuals with Endometriosis. It's time to #BreakTheSilence | Internacional | t.co |
| 58 | @carsonsarahj | Sarah Holdsworth-Carson | Reproductive Scientist @thewomens @unimelb @unimelbMDHS. Research interests include women's health: endometriosis, fibroids and uterine disorders. | Internacional | |
| 59 | @AEXAE_ | AEXAE ENDOMETRIOSIS | Bienvenid@s a la Asociacin Extremea de Afectadas de Endometriosis. Un sitio para difundir y compartir informacin sobre la Endometriosis. #stopendometriosis | Internacional | t.co |
| 60 | @2013Clairew | Endometriosis fife | Your not alone we fight endo together I am here to support everyone who fights. You have endo but it doesn't have you fifeendogroup@gmail.com | Internacional | t.co |
| 61 | @PeaceWithEndo | Aubree Deimler | Intuitive empath & endo sister seeking good vibes Author, coach & energy healer leading the #peacewithendo movement | Internacional | t.co |
| 62 | @Gabriel_Hrnandz | Gabriel Hernández M. #RForever | 23. Venezolano. UDO. Medicina. Me gusta el tenis y el ftbol. Real Madrid C.F., R. Federer y S. Halep. Comer, dormir y aprender son mis 3 hobbies favoritos. | Madrid | t.co |
| 63 | @Endomarch_Wales | EndoMarchWales | The Wales legs of @WWEndoMarch at #Mold & #Cardiff. Raising awareness of #endometriosis, the debilitating condition that affects 1 in 10 women. #EndoMarch | Internacional | t.co |
| 64 | @cocofitzpatrick | Coco | Living w/ pelvic pain/endo HSP Vegan Anti-racism Womens health + animal advocate. Always learning. | Internacional | |
| 65 | @EndoTeam | Endometriosis Team | We are a global community dedicated to increasing awareness and advancing the development of new treatments for women living with endometriosis. | Internacional | |
| 66 | @WSE2014 | WSE Endometriosis | The World Symposium on Endometriosis is bringing together 55+ of the world leaders to present the latest science on endometriosis. | Internacional | t.co |
| 67 | @EndoForum | #FamilyMatters-EndTravelBan | Battling Endometriosis for 20+ years. Found cure with strict diet. Endometriosis Free since 2009 thanks to clean healthy food. Ask me anything! | Internacional | |
| 68 | @AEXAEndo | AEXAE Endometriosis | Asociacin Extremea de Afectadas de Endometriosis // Constituda el 01 de Junio de 2013 | España | |
| 69 | @EndometriosisEc | EndometriosisEc | Ecuatoriana con endometriosis. En busca de personas con esta situacin de vida y especialistas en nuestro pas que nos puedan ayudar. | Internacional | |
| 70 | @EndometriosisLA | Endoguerreras | Cuenta dedicada a Endoguerreras para darnos apoyo y compartir informacin. Account for endowarriors for give us support and share information. | Internacional | |
| 71 | @EndoCatalunya | Endo Catalunya | https://t.co/qjoHxkazdshttps://t.co/YlOevIbAm3 | España | t.co |
| 72 | @WorldEndoSoc | WES | The World Endometriosis Society (WES) leads the way in endometriosis and adenomyosis and is delivering the 14th World Congress on Endometriosis (WCE2021) | Internacional | t.co |
| 73 | @talkaboutendo | Let's Talk about Endo | Nurse, anthropologist and fellow Endo-sista sharing content on endometriosis and other pelvic issues. | Internacional | |
| 74 | @ShannonOrgan2 | Shannon Organ | Endometriosis Warrior | Internacional | |
| 75 | @newsforendo | EndoNews | Our goal at https://t.co/3mB3JZLss7 is to raise awareness and support women who are struggling in their battle against endometriosis. | Internacional | t.co |
| 76 | @miEndometriosis | Mi Endometriosis | Internacional | t.co | |
| 77 | @LifeWithEndo_JM | Life With Endo | I'm not a doctor nor scientist. I'm just a woman who was diagnosed with Stage IV Endo. Together we can spread the word...this is Our Life With Endometriosis. | Internacional | t.co |
| 78 | @IEndometriosis | InfoEndometriosis | Llevo 17 aos viviendo con endometriosis (aunque solo 3 sabindolo). Aqu tweets sobre endo en general, novedades en mi pgina y cosillas personales. | Internacional | t.co |
| 79 | @FunctioningEndo | FunctioningwithEndo | Stage IV Endometriosis.Just trying to live a normal life whilst fighting every step of the way with all the hurdles that come with having Endo | Internacional | |
| 80 | @Endo_Jenn | Jenn Schropp | Endometriosis Educator/Advocate - Interstitial Cystitis - Anemia - Menopause - Dogmom - Empowering Women - Kindness Is EverythingPro Photographer - Publisher | Internacional | |
| 81 | @endovikinga | EndoVikinga | Hablo de mi #endometriosis y #dolorcrnico Formo parte de @saludesferatw @pacienteqcuenta Mejor Blog 2019 #endodance info@endovikinga.com | Internacional | t.co |
| 82 | @EndoStirling | Endo Sisters Stirling | A new support group for women with #endometriosis in Stirlingshire/Perthshire | Internacional | |
| 83 | @EndoNEssex | NEssex Endometriosis | We are the North Essex (Colchester) Endometriosis Support Group. Information|Support|Friendship for local women suffering with Endometriosis | Internacional | t.co |
| 84 | @endometriosisGh | Ghana Endometriosis | Endometriosis Foundation Ghana is a Non-Profit Organisation focused on creating awareness on Endometriosis & providing relevant support to the people affected. | Internacional | t.co |
| 85 | @endomadrid | Asociación ENDOMadrid | En defensa de derechos de ciudadanas con #endometriosis, #adenomiosis y trastornos asociados #Asociacin n37.246 | Internacional | t.co |
| 86 | @endoevents | Endometriosis Events | Follow us on #Twitter, #Facebook and #Instagram for news and updates on #endometriosis fundraising events in the #GTA & #Canada. info@endometriosisevents.org | Internacional | t.co |
| 87 | @endocansupport | Endometriosis Canada Support | Support for all Endo Warriors. you are strong, beautiful ,and fighting a war. We will be your soldiers standing behind you, always ready to help you fight! | Internacional | |
| 88 | @endo2015 | Endometriosis 2015 | Conference will cover topics related to #endometriosis, a debilitating, chronic disease that can disrupt a womans professional & family life. #endo2015 | Internacional | t.co |
| 89 | @ConquerEndoB | Conquering the Endo Beast | Raising awareness about endometriosis & supporting women who suffer from it. Working to END THE SILENCE! | Internacional | t.co |
| 90 | @CailinAI | Cailín Endometriosis Diagnostic | Reducing the impact of endometriosis through timely diagnosis. | Internacional | |
| 91 | @AEndoValencia | AAEV | Asociacin de Afectadas de Endometriosis de Valencia | Valencia | |
| 92 | @yellowendo | Yellow Endo Flower | Endowarrior & Endo ambassador. Author. Trainer. Content creator. I want to demystify periods & empower girls to listen to their bodies. | Internacional | t.co |
| 93 | @mireiajmnz | Mireia Jimenez | Embryologist in UK| Master Degree in Biotechnology of assisted human reproduction| Sono un'appassionata della cultura e lingua italiana| | Italia | |
| 94 | @FurrowedFox | Fox | Reproductively challenged. Lady bits are FUBARed. Ectopic x2. Failed surrogacy. Adoptive mom. Endo/Adeno/Hyster. ProChoice Feminist. | Internacional | |
| 95 | @EndomarchLondon | EndoMarch London | The Official EndoMarch London Twitter page | Internacional | t.co |
| 96 | @CheerUpEleanor | eleanor | Nanny, writer, procrastinator, and #endo sister | Internacional | |
| 97 | @endomx | Endometriosis Mexico | La endometriosis es una enfermedad que no tiene cura, habemos ms de 7 millones de mexicanas afectadas, por favor, aydanos a difundir! | Internacional | t.co |
| 98 | @TengoEndo | Tengo Endometriosis | Internacional | ||
| 99 | @endoalliance | Endometriosis Allies | Endometriosis Awareness Alliance is a community group raising awareness and funds for research. Join us in the fight for a cure! | Internacional | |
| 100 | @EndometriosisPR | Endometriosis de PR | Queremos servir como fuente de apoyo y educacin a las miles de mujeres que padecen de esta incapacitante condicin. | Internacional | t.co |
Las mujeres con endometriosis es uno de los colectivos de enfermos más desprotegidos que hay en la actualidad. Pese a que esta enfermedad suele producir dolores incapacitantes nunca se concede una baja por este motivo. Los sucesivos gobiernos de España contemporizan mientras más de un millón de mujeres sufre con cada menstruación dolor pélvico, calambres abdominales y otras complicaciones como la destrucción de algunos de sus órganos y en muchas ocasiones la infertilidad.
Ya han pasado más de 10 años desde la primera PNL que se presentó en el Congreso de los Diputados pero apenas han habido avances para las pacientes. El tiempo medio de diagnóstico es de más de 5 años, no se han abierto unidades de referencia y todo sigue igual.
Por ello este colectivo de mujeres enfermas se han organizado en Internet y la prueba de ello es su gran actividad en redes, foros y asociaciones de pacientes.
Libro recomendado: Érase una vez… mi endometriosis, Crónica de una enfermedad diferente de las demás, es el título de un libro ilustrado sobre la endometriosis publicado por MaY Fait Des Gribouillis en la editorial RBA. La obra nos da una perspectiva nueva, desde el punto de vista de la autora, paciente de la enfermedad. Con la ayuda de MaY y sus espléndidas y divertidas ilustraciones, las lectoras descubren qué es exactamente la endometriosis, cómo se diagnostica y se trata, así como consejos para aprender a vivir mejor con ella. |  |
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